Welcome to my ACHA Walk for 1 in 100 Page!
Thank you for visiting my Walk for 1 in 100 personal fundraising page. As a patient of Congenital Heart Disease, I am a huge supporter of the Adult Congenital Heart Association and the great work it does.
For those of you who don't know my story, I was born with a congenital heart defect that wasn't discovered until a few months after I was born. Once I was diagnosed, we discovered that I basically had no atrial septum. I had surgery a few months later to build a wall, and then more surgeries when I was 3 and 5 to restructure it as me and my heart grew.
Life was fairly normal until after I graduated college when an annual checkup discovered that my mitral valve was leaking quite a bit. I had surgery at age 24 to replace that valve, and before I was discharged they had to put in a pacemaker as well, because that surgery had interrupted some of the electrical lines of my heart.
My 5th open heart surgery was at age 36, when they had to replace my valve once more, and while in there they discovered that my atrial wall that was built as a child had calcified, so they removed and re-built that while they were in there.
Along with those surgeries, I have had 3 additional pacemakers put in as each one's battery died. I have also developed atrial flutter, where my atrium will beat somewhere in the 200 beats per minute range, and my ventricle will run in the 130s... a little uncomfortable when it's happening, but so far it will either come out of it on its own, or they can use the pacemaker programmer to get me out of it.
Through this journey, the ACHA has been an invaluable resource. Not only did finding their page help me to realize I needed to be back in specialized care (I ended up in regular cardiology after one of my pediatric cardiologists moved away), but their ongoing research and webinars help patients and their families stay informed of best practices and how to take care of themselves. I have also been able to attend Local and National Heart Conferences sponsored by ACHA.
Additionally, I am a Peer Support Mentor for them, which gives me an amazing opportunity to reach out and help others who are going through the same thing as me.
Omaha will be hosting an ACHA Heart Walk on Saturday October 23rd at 9am at Stinson Park, 67th & Pacific in Aksarben Village. Please consider joining my team or creating one of your own for this amazing event!
Please consider making a tax deductible contribution to support my fundraising efforts for the Adult Congenital Heart Association. All funds raised benefit CHD research and programs.
I appreciate your support!
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