Welcome to My Personal Page
My name is Anjali Grutzius and I am a Congenital Heart Defect survivor. I was born with Modified Ebstein’s Anomaly, a rare heart disorder involving a malformation of the tricuspid valve and right ventricle. I was sent in for surgery 7 hours after I was born to have a shunt put in. At the age of 1 I had another surgery, a Bi-directional Glenn done and then at the age of 2 I had my Fontan surgery. I have three overlaying scars that run from my collarbone down to just above my belly button, and multiple small scars on my chest. My entire life I have been on medication, taking them every morning without fail. In elementary school, I learned quickly that I was not like other children. I could not run as fast or as far. I tired easily during P.E. There were many times that I felt different and thought my scars were ugly. I didn’t like it when people asked questions. I would explain and once they knew my condition, teachers and fellow students began to see me differently, as someone who couldn’t do the same things. But I knew I could, they just wouldn’t see that. As I have grown over the years, I can tell you all that I see myself very differently today. With the help of UW Medical and their wonderful staff members in the Regional Heart Center, I have embraced the life I have been given and enjoy being a part of this family now, my family of Heart Warriors. I have become used to annual cardiology appointments over the many years but when I go to visit my doctors now, I kind of look forward to it, to just talk with them and give them some updates on my life. They know I have memorized the process for an ECHO or an EKG, they explain information to me as an equal, answer all of my questions about my physical limits and listen to my concerns. My cardiology nurse, Amanda Meier has been so amazing and helpful with my transition from Seattle Children’s to UW Medical to be under the care of Dr. Eric Krieger. I don’t feel like a patient number on some chart, UW Medical Regional Heart Center treats me like the real person, the young adult that I am
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Thank you for visiting my Walk for 1 in 100 personal fundraising page. Please consider making a tax deductible contribution to support my fundraising efforts on behalf of The Adult Congenital Heart Association. All funds raised benefit CHD research and programs. I appreciate your support!
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