Team WE HEART EMILY
Hi! Thank you for visiting my Walk for 1 in 100 personal fundraising page. I'm Emily and I was born with Shone's complex (multiple left-sided heart defects), a rare congenital heart defect (CHD). I have had 4 open heart surgeries: coarctation of the aorta repair (at 11 mo.), Ross procedure (at 15 yr.), Bentall procedure (at 31 yr), and mitral valve replacement (at 32 yr). I grew up in continual cardiac care with physical limitations as a child. Fortunately, my first valve replacement surgery at 15 years old enabled me to thrive! I obtained Bachelor’s and Master’s degrees, went to culinary school, opened a restaurant, lived and worked in England and climbed Machu Picchu!
At age 30 I became symptomatic again and was reminded that I am and always will be living with CHD. After two open heart surgeries as an adult, I am now two years post-op and thriving again! I am walking to be an advocate for the CHD community, to raise awareness and money for CHD and to empower others to thrive.
I wouldn't be alive and thriving without the support of my family, friends, medical team and the Adult Congenital Heart Association. Let's celebrate our community! Please consider making a tax deductible contribution to support my fundraising efforts on behalf of the Adult Congenital Heart Association. All funds raised benefit CHD research, education, advocatcy and outreach. I appreciate your support!
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